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HIV Cost and Services Utilization Study (HCSUS)

The HIV Cost and Services Utilization Study (HCSUS) includes multi-item measures of physical functioning, role functioning, pain, general health perceptions, social functioning, energy, and emotional well-being. It also included single-item measures of disability days, overall health, and overall quality of life.

Available documents:

Description of survey and scoring instructions

Download document

Survey instrument

Download document

All HCSUS questionnaires

Available at HCSUS website

Related reading:

Hays, R. D., Cunningham, W. E., Sherbourne, C. D., Wilson, I. B., Wu, A. W., Cleary, P. D., McCaffrey, D. F.,Fleishman, J. A., Crystal, S. C., Collins, R., Eggan, F., Shapiro, M. F., & Bozzette, S. A. (2000). Health-related quality of life in patients with Human Immunodeficiency Virus Infection in the United States: Results from the HIV Cost and Services Utilization Study. American Journal of Medicine, 108, 714-722.

Hays, R. D., Morales, L. S., & Reise, S. P. (2000). Item Response Theory and Health Outcomes Measurement in the 21st Century. Medical Care, 38 (Suppl.), II-28-II-42.

Sherbourne C.D., Hays R.D., Fleishman J.A., Vitiello, B., Magruder, K. M., Bing, E. G., McCaffrey, D., Burnam, A., Longshore, D., Eggan, F., Bozzette, S. A., & Shapiro, M.F. (2000) Associations of psychiatric conditions with health-related quality of life in persons with HIV infection. American Journal of Psychiatry, 157, 248-254.